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To join this community:
Membership for [info]cerebral_palsy is moderated.  Once you have requested to join, your approval is based on one of the following:

1) You have a journal on LJ that is at least a month old.  With content. If your journal is "friends only" please see number 2.
2) Barring that, you can choose to post a comment here telling me why you would like to join the community.  All comments on this post are screened. 

Membership will be approved once one of these two conditions are met (if appropriate).

Should you so choose, you can also email the mod at a_dawn@livejournal.com

I apologize for the inconvenience, but due to spam and general trolling it has become necessary.

Thank you!

28th-May-2012 01:59 am - Because another few CP-related groups couldn't hurt...
[info]aleja
I know I have shared this group with others (and do), but there aren't as many people on LJ as there once were...

Some other outlets I know:

You Know You Have CP When.... (Facebook group)

youknowyouhavecpwhen (Tumblr)

Some cross-site collaboration could be good, too. :)
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26th-May-2012 03:09 am - Footwear and purchase disasters
[info]coldlikedeath

Like every woman seems to, I adore shoes. I got into the whole fashion thing quite late and could not wear high heels or heels of any sort until my tendon-lengthening op in 2005 because my balance was so rubbish.

The question I have is as a woman with very mild spastic diplegic cerebral palsy affecting the legs and using a walker, has anyone here ever worn ballet pumps, are they useful for people with walking/balance/support problems (I wouldn’t think so) and are high heels particularly damaging to people like myself that had short heel tendons in the past? I don't think the use of heels will make them shorten again (I bloody hope not).

I know this is written awkwardly but I hope you have answers, I’d be interested to see what others think; I ask because when I went to the opera recently it was a mad run around the shops to find something suitable... I bought myself a pair of 5 inch heels. I do not think that was the best idea I have ever had, and I got to thinking it may impact my legs negatively (I like 'em though!). Tell me about your what-was-I-thinking purchases too, surely I'm not alone?

ETA: I don't have orthotics or anything like that to consider.

26th-Apr-2012 05:22 pm - Working with animals?!
wee mj
[info]3bass
Hello all,
Does anyone here work with animals as a career? I am passionate about animals and am considering beginning a course in Animal Management in September. I would like to work in a hands on role with animals, if at all possible. I have thought that I would enjoy being a Veterinary Assistant but am nervous about the very physical side of the job; ie wrestling larger animals, lifting etc. My CP is mild but affects my balance quite considerably.

I am not dead set on having to become a VA, as I know that it is a very physical job so I am aware that I am perhaps not being one hundred percent realistic about being hired in that role. Really I would be happy in any animal related role in any kind of setting. Are there any animal related jobs which I would be fully capable of?
13th-Feb-2012 06:57 pm - New Google Group
Julia, Harness, Working
[info]read2781
I've created a google group for those interested. It is a group designed to give and receive emotional or other support for people who are wearing AFO or other types of orthotics. The name of the group is Orthotics Support. The membership is open so anyone with an interest in the topic is welcome to subscribe.
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31st-Jan-2012 09:02 pm - DVDs Available
[info]evester22
DVDs of Respect: The Joy of Aides are now available for purchase! Visit www.joyofaides.com to order a copy.
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2nd-Jan-2012 06:14 pm - Groundbreaking new documentary
[info]evester22
Invitation to Attend the Première of the Documentary “Respect: The Joy of Aides”

Date: Saturday, January 7, 2012
Time: 11:00 AM-1:00 PM
Location: The Downtown Independent Theater, 251 S. Main Street, Los Angeles, CA 90012

What if one day, you woke up and found that you could no longer walk? What if you opened your mouth and couldn't form the words that you heard so clearly in your head? Who would you trust enough to speak for you? ( Read more... )
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31st-Dec-2011 12:15 pm(no subject)
wee mj
[info]3bass
Hi everyone!
Does anyone here use an "adult tricycle" to get around? I have Spastic Diplegia and at 23 am starting to become frustrated with having to rely on constantly getting rides everywhere I want to go. I'm a little bit too apprehensive about trying to drive at the moment so this seems like a solution that would also get me some exercise! I had a big trike when I was a kid and loved it! ....Until puberty kicked in and I became concernned with how silly I might have looked. I have to admit that thing was quite comical looking....but I've been browsing around on the Internet and they make some pretty nifty looking ones these days! I'll probably still look like a pratt..but that's a risk I'm willing to take if it means getting out and about easier. Just wondering if anyone has any experience? Thanks!
29th-Nov-2011 10:34 pm - Spasms or seizures?
Redken Chromatics Gold Mocha Brown 3
[info]brightrosefox
Who here has epilepsy, particularly partial seizures? If so, do you sometimes mistake spasticity for seizures?
My friends and family have told me that I seem to be seizing several times a week, but I have absolutely no memory of most of them (I tend to remember at least parts of seizures).
Occasionally, I'll find myself having massive spasms that almost feel like the unreal, distorted feelings of a small seizure.
I'll be making an appointment with my neurologist for an EEG within the next few weeks, even though my last EEG didn't show seizure activity. But I'd love some advice from this community. I'm really wondering about the neurological implications of spastic CP in CPers with seizure disorders...
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29th-Nov-2011 08:28 pm - In the Workplace
cute kitties
[info]secretsjsands
Hi everyone! This may be an odd question but I'll start off with this. I've never held a job outside of the home (I'm 23) and don't know what to look for. I've had "testing" done to see what kind of jobs I might like (organizing, filing, etc...) and most of them are behind the desk, receptionist type jobs (I Hate the telephone.) I would really like to go back to college, but don't know what for. I was thinking if other people with CP could tell me what kind of jobs/careers they've had I may get around thinking I can't find a job because of the negatives or limitations (stamina and balance, standing and walking for long periods of time).

The one good job I have found (that I know I would love) is at the local library, shelving books, but it's only a handful of hours a week.
7th-Nov-2011 04:07 pm - Acupuncture?
[info]incogneato86
Has it helped any of you with relief from muscle tension?
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